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Scholarly Profiles

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Image Title Date Type
Enhancing partnerships in care by nurturing self-trust
557 Enhancing partnerships in care by nurturing self-trust: a large-scale qualitative study of experiences with cystic fibrosis 2025-10-01 Journal Article
Prolotherapy in the Academy: A Mixed Methods Survey Study
Prolotherapy in the Academy: A Mixed Methods Survey Study 2025-08-27 Journal Article
Gaps in benefits, awareness, and comprehension that leave those with long COVID vulnerable
Gaps in benefits, awareness, and comprehension that leave those with long COVID vulnerable 2025-06 Journal Article
Exploring sociodemographic disparities in diagnostic problems and mistakes in the quest for diagnostic equity
Exploring sociodemographic disparities in diagnostic problems and mistakes in the quest for diagnostic equity: insights from a national survey of patient experiences 2025-02-12 Journal Article
Those boxes do not hold me
“Those boxes do not hold me”: Using Narrative Health Experiences Research to Learn from Patients and Care Partners Beyond Surveys 2025 Journal Article
Tu1146
Tu1146: Comparing and Contrasting Lived Experiences of Patients with Lynch Syndrome and Polyposis Syndromes 2025 Journal Article
Wobbly moments
Wobbly moments: Trust considerations for evolving cystic fibrosis care models 2024-11 Journal Article
Prolotherapy in the Academy
Prolotherapy in the Academy: Results of a National Cross-Sectional Mixed Methods Survey 2024-11 Journal Article
We talking about trust? I have some stories for you
570 “We talking about trust? I have some stories for you”: Robust recruitment response through CFF Community Voice for qualitative research illuminates methods for advancing trust-based partnerships 2024-09-04 Journal Article
Trust is at least as healing as medicine
“Trust is at least as healing as medicine”: preliminary results from a large-scale qualitative study to enhance CF care partnerships 2024-09 Journal Article
Cross country analysis of qualitative interviews
Cross country analysis of qualitative interviews: Developing a method, a community and an understanding of how Covid has been experienced around the globe 2024-06-13 Journal Article
A qualitative feasibility study of a prototype patient-centered video intervention to increase uptake of cancer genetic testing among Black Americans
A qualitative feasibility study of a prototype patient-centered video intervention to increase uptake of cancer genetic testing among Black Americans 2024-04-11 Journal Article
Assessing an innovative method to promote learning from patient narratives
Assessing an innovative method to promote learning from patient narratives: Findings from a field experiment in ambulatory care 2024-04 Journal Article
Learning from patients
Learning from patients: The impact of using patients' narratives on patient experience scores 2024 Journal Article
The Perceived Usefulness of Patient Narrative Feedback in Primary Care Settings
The Perceived Usefulness of Patient Narrative Feedback in Primary Care Settings 2024 Journal Article
Leveraging Patients’ Creative Ideas for Innovation in Health Care
Leveraging Patients’ Creative Ideas for Innovation in Health Care 2024 Journal Article
Nothing Is More Powerful than Words
“Nothing Is More Powerful than Words:” How Patient Experience Narratives Enable Improvement 2024 Journal Article
Navigating responsible bio-political citizenship
Navigating responsible bio-political citizenship: Cross-country comparison of stigma in Covid-19 illness narratives in Germany, Japan, the UK and the USA 2023-12 Journal Article
“You have to trust yourself”
“You have to trust yourself”: The Overlooked Role of Self-Trust in Coping with Chronic Illness 2023-11-14 Journal Article
When Mistakes Multiply
When Mistakes Multiply: How Inadequate Responses to Medical Mishaps Erode Trust in American Medicine 2023-11-14 Journal Article
Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic
Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic: Validated, diverted and rejected candidacy 2023-06 Journal Article
The familial canopy as thought space for meaning making, emotional calibration and planful action around inherited cancer risk
The familial canopy as thought space for meaning making, emotional calibration and planful action around inherited cancer risk 2023-06 Journal Article
Talking about inequities
Talking about inequities: A comparative analysis of COVID-19 narratives in the UK, US, and Brazil 2023-06 Journal Article
Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care
Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care 2023-01-1 Journal Article
Parenting Children
Parenting Children with Cystic Fibrosis: Developmental Acquisition of Expertise 2022-09-01 Journal Article